National Collaborative
Get Involved in the National Supporting Families Movement
The National Collaborative for Supporting Families
The National Collaborative for Supporting Families is an outgrowth of the interest and momentum for continued, shared efforts following the Supporting Families Summit. To prioritize the efforts and objectives of this collaborative, a survey was distributed amongst those who attended the Summit and associated events.
A meeting was held on April 14, 2023 to discuss the formalization of the National Collaborative which included:
- Overview of the summary of the Supporting Families Summit held May 2022 and the resulting recommendations, which will form the National Agenda for Supporting Families report
- Updates from the key areas for supporting families, including federal policy, state systems, grassroots advocacy, research, and best practices
- Review next steps for the National Collaborative for Supporting families, specifically related to disseminating information and elevating best practices.
Supporting Families Best Practices Series
The Supporting Families Best Practice Series will introduce and elevate best practices related to supporting families. The series will be held quarterly in collaboration with the National Community of Practice for Supporting Families. Each session will feature a panel of individuals or entities who will address key recommendations from the National Agenda through their lens of grassroots advocacy, “practice level” implementation, states service systems, federal policies, and research. Proposed topics include: expanding and operationalizing family support, professionalizing roles for people with lived experience (including funding and formalizing peer support), waiver supports and services, and front doors to supports.
| Call Date | Time | Connection Information | Topic |
|---|---|---|---|
| September 7, 2023 | 1:00 pm - 2:30 pm (CST) | Watch the Webinar | Expanding and Operationalizing Family Support |
| December 7, 2023 | 1:00 pm - 2:30 pm (CST) | Watch the Webinar | Enhancing the Peer Support Workforce for People with I/DD and their Families |
| April 4, 2024 | 1:00 pm - 2:30 pm (CST) | Watch the Webinar | The Role of HCBS Waiver Services in Supporting Families |
| August 15, 2024 | 1:00 pm - 2:30 pm (CST) | Watch the Webinar | Supporting Families to Navigate Services and Supports |
| November 21, 2024 | 1:00 pm - 2:30 pm (CST) | Link coming soon. | Respite for Families |
| February 20, 2025 | 1:00 pm - 2:30 pm (CST) | Register Here | TBD |
| May 15, 2025 | 1:00 pm - 2:30 pm (CST) | Register Here | TBD |
Supporting Families Media Kit
Share the National Agenda materials and upcoming meeting dates with your networks! Attached you will find a marketing kit with a newsletter article and social media posts as well as powerpoint slides to present on the Agenda and Recommendations.
National Collaborative for Supporting Families Steering Committee
In response to this feedback, the National Collaborative will form a Steering Committee, which will serve as a space for connection and information dissemination for systems change agents dedicated to enhancing supports for people with IDD and their families. The Steering Committee will convene quarterly, and members will serve as advisors for the Supporting Families Best Practice Series. Meetings for the Steering Committee will be in August 2023, October 2023, January 2024 and April 2024 (dates and times TBD).
Organizations Involved in the National Collaborative for Supporting Families
National Association of State Directors of Developmental Disabilities Services
University of Missouri-Kansas City-Institute for Human Development, UCEDD
Association of University Centers on Disabilities (AUCD)
Autism Society of America
Autistic Self Advocacy Network
Brandeis University
Brill Consulting LLC
Center for Learning and Leadership/UCEDD
Center for Parent Information & Resources (CPIR)
Families Together Inc./Family to Family Health Information Center
Family Advocacy and Community Training
Family Voices of Wisconsin
Georgetown University Center for Excellence in Developmental Disabilities
Green Mountain Self-Advocates
HIGH IMPACT Mission-Based Consulting & Training
HMA
Human Services Research Institute
Imagine Possibility LLC
Inclusion International
Indiana Bureau of Developmental Disabilities Services
Institute on Disability and Human Development University of Illinois Chicago
Maryland Developmental Disabilities Administration
MFTD Waiver Families and Kids Waivers
Michigan Developmental Disabilities Institute Wayne State University, UCEDD
Minnesota Community of African People with Disabilities
Munroe-Meyer Institute University of Nebraska Medical Center LEND/UCEDD
NADD
National Alliance for Caregiving
National Association of Councils on Developmental Disabilities
National Center on Cultural and Linguistic Competence
National Down Syndrome Society
National Family Voices
National RAISE Family Caregiving Advisory Council
Ohio Department of Developmental Disabilities
Open Doors for Multicultural Families
Oregon Council on Developmental Disabilities
Parent to Parent USA
Partners for Inclusive Communities, Arkansas UCEDD
People First of Alabama
Quality Trust for Individuals with Disabilities
Self Advocacy Resource and Technical Assistance Center (SARTAC)
Self Advocates Becoming Empowered (SABE)
Sibling Leadership Network
Spectrum of Hope
State of Maryland Developmental Disabilities Administration
TASH
The Arc of the United States
Transition Consults HUNE
University of Minnesota
US Aging
USC UCEDD at Children’s Hospital Los Angeles
USC UCEDD at CHLA
Utah Developmental Disabilities Council
We Stand 4 Something
A collaboration between the Community of Practice for Supporting Families, University of Missouri Kansas City Institute for Human Development (UMKC-IHD) and the National Association of State Directors of Developmental Disabilities Services (NASDDDS)
