The National Community of Practice for Supporting Families of Individuals of I/DD originally began in 2012 as a project funded by the Administration for Intellectual and Developmental Disabilities. Connecticut, District of Columbia (DC), Oklahoma, Tennessee, Washington and Missouri (as the mentor state), to build capacity through a community of practice across and within these states to create policies, practices and systems to better assist and support families that include a member with I/DD across the lifespan.

Participating states have changed the front door into the system, improved cultural considerations in supporting families, guided and influenced policymakers and helped shape waivers and other Medicaid authorities to focus on supporting families and individuals throughout the lifespan. The National Association of State Directors of Developmental Disabilities Services (NASDDDS), along with the University of Missouri Kansas City Institute for Human Development (UMKC IHD), partner to support states, work to impact national policies, develop products and tools, and provide technical assistance.

In July 2016, eleven (11) new states joined the CoP in addition to the original states.  While each state approach varies, all participate with the mutual commitment to support the goals identified in the 2011 Wingspread Family Support Summit which is as follows, “Overall Goal of Providing Support:  The overall goal of supporting families with all of their complexity and diversity, is to maximize their capacity, strengths, and unique abilities so they can best support, nurture, love and facilitate opportunities for the achievement of self-determination, interdependence, productivity, integration, and inclusion in all facets of community life.”

Original CoP States

Graphic: Map of the United States with the 6 original CoP states shaded in purple.

Expansion CoP States

Graphic: Map of the United States with the original CoP states shaded in a dark purple and the expansion states shaded in lighter purple.





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